Just when you thought things might be settling down over here.
His (awesome) pediatrician didn't seem too alarmed. He referred us to a pediatric ENT and said it was probably laryngomalacia, which can be common in preemies, and as long as they're gaining weight just means it'll be slightly annoying how wheezy his breathing sounds until he outgrows it at around a year.
The ENT books up fast and we were looking at an appointment 3 weeks out, but mercifully, they had a cancellation this afternoon. Based on his symptoms, both the PA and the doctor were pretty sure this was in fact laryngomalacia, and all that was left to do was to scope Isaac's throat to see if the case was mild or severe. Well turns out, it's not laryngomalacia.
If you google an image of a healthy larynx, you'll see a nice black spot in the middle which indicates a clear path to the wind pipe. Isaac doesn't have a black space. His is blocked by some subglottic cysts. It's suspected the cysts are from that short time he was intubated in the NICU. And so the surgery, that is urgent enough to be tomorrow, but not so urgent as to require a trip to the ER tonight, should take care of it. He'll have the same procedure in 6-8 weeks to make sure the problem is all cleared up.
Needless to say, we're asking for prayers. Since the surgery is being scheduled so last minute, it won't be until the late afternoon tomorrow. I'm not looking forward off to cutting off giving him breast milk at noon, and if Isaac knew about it, I don't think he would be either. He'll have an overnight stay of 1-2 days, and his breathing should improve immediately following the procedure. We are all looking forward to that.
Prayers for Isaac and his parents!ReplyDelete
Praying for Isaac again! He's a popular little dude in my prayers :) It's always nice when there's a diagnosis and a solution to a problem, as much as we don't want our babies to go through any procedures. He's gonna do great, I mean, he's such a fighter already :)ReplyDelete
Prayers! Sweet boy!ReplyDelete
we'll be praying…he has the most darling cheeks!ReplyDelete
Praying. He's a feisty one- always keeping you on your toes.ReplyDelete
Sending prayers for Isaac and you & Mark🙏ReplyDelete
Prayers for all of you for sure!ReplyDelete
Praying for you all!ReplyDelete
Keeping him in our prayers!!!ReplyDelete
Oh little boy!! Prayers for you all.ReplyDelete
I'm glad the problem was diagnosed right away, and I'll keep you all in my prayers!ReplyDelete
My sweet baby lamb--his grandma will be going to Mass tomorrow and praying to St. Joseph to intercede for our little Isaac Joseph.ReplyDelete
Oh, Anne. I can't wait for your Wednesdays to be full of playdates and not diagnoses, but until then, know that we are praying praying praying for little Isaac. He's such a champion, I can't wait for him to rest on his laurels a little while. What AWESOME, vigilant parents he has!!ReplyDelete
praying it all goes well. He is sooo cute!ReplyDelete
Praying for Isaac, his doctors, nurses and of course his Mommy and Daddy!ReplyDelete
I'll be praying for you guys! Hope everything goes well. He is such a cute little guy!ReplyDelete
I have my own baby Isaac, love the name, I'll be praying for him and for strength for you!ReplyDelete
Poor baby! Prayers for sure.ReplyDelete